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Tag: podcast

  • EP4 – Lee Reavey, Co-Founder and CEO of the NCBRS Worldwide Foundation

    Lee Reavey is the Co-Founder and CEO of the NCBRS Worldwide Foundation. He co-founded NCBRS Parent Support Group in May 2010. Lee’s son received a diagnosis Nicolaides-Baraitser Syndrome as only the seventh known case of NCBRS in the world. At that time, there was very little, if any, information available online. NCBRS is related to…

  • Goodbye 2022

    In 2022, many of us had our biggest and most chaotic year ever. Despite the ups and downs, we’ve made it this far together.

  • Dazzle4Rare 2021 Wrap-up

    D4R Wrap-up View online version Dazzle4Rare Wrap-up More co-hosts than ever! Team Dazzle has been so lucky and blessed to be able to say that in 2021, because of he efforts of so many existing relationships, we were able to welcome 7 new co-hosts and we had the most co-hosts ever have ever had!  A…

  • D4R 2021 Content

    D4R 2021 Links to Content View online version D4R 2021 Content Welcome to Dazzle4Rare 2021 Where to download Here are the details for downloading assets/content to schedule for D4R. Reminder, the week starts on 8th and ends 15th August. If you require teaser content to post, please let me know. There is currently a countdown…

  • Dazzle4Rare Co-Host & Message Updates

    D4R Updates New Co-Host Messages View online version D4R Updates Dazzle4Rare Co-Host & Message Updates  New Co-host & Message Updates There have been changes to two org messages as well as a new-to-the-Dazzle org. Rare Revolution Magazine RRM has released their new edition of Rare Revolution Magazine so the link in their message has changed…

A Symplur screenshot showing 2021 hashtag Twitter social media impressions for the event week.

Timeline Impressions

2021

Twitter Timeline Impressions

2022

A screenshot of Dazzle4Rare 2022 Twitter impressions courtesy of Simplur, the healthcare hashtag tracker. The image shows "The numbers" 9.477 million impressions, 3,979 tweets, 239 particpants, 21 average tweets per hour, and 17 average tweets per participant.
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